Below you will find a list of resources that have been invaluable to us in learning about CVI. We hope they will be useful to you as well!
We are always looking for new resources to add to the page, so please let us know if there are resources you think belong on the list.
Blogs & Websites
Babies with iPads is a blog style website with reviews of apps appropriate for children with disabilities. There is a list of iPad apps that they suggest are suitable for children with CVI.
CVI Resources was created by Dr. Christine Roman, CVI expert and author of Cortical Visual Impairment: An Approach to Assessment and Intervention.
CVI Teacher is a blog with lots of useful articles by Ellen Cadigan Mazel. Topics range from hands-on approaches to solving issues in school settings, to great articles about the CVI range and more.
Paths to Literacy is a joint project between Perkins School for the Blind and Texas School for the Blind and Visually Impaired (TSBVI). It has great hands-on articles about CVI from various authors.
Strategy to See is CVI expert Diane Sheline’s website. Check out her Toolbox for great tips for both guardians and teachers.
The Independent Little Bee has some great information for families with visually imparied children. There are several posts specifically about CVI.
WonderBaby.org is a great website dedicated to helping families with children who have vision impairments and multiple disabilities. They are sponsored by the Perkins School for the Blind and offer articles, reviews and a large collection of resources.
Smart Toys, a guide to developmental toys, offers some detailed tips for helping partially sighted infants see.
Books and Courses
Dr. Gordon Dutton, a pediatric ophthalmologist, offers an online course about CVI. For more information about the course, visit his CVI course preview page.
A Team Approach to CVI in Schools, by Donna Shaman, strives to help children with CVI to better understand their visual world and increase their school participation through skillful and collaborative teaching strategies of the Individualized Education Program (IEP).
Organizations
American Foundation for the Blind is another great resource for a variety of visual impairments. They host a comprehensive site about CVI, including some detailed articles.
American Printing House for the Blind is a great resource for information about a variety of visual impairments. They also offer a CVI information website.
Junior Blind for America (formerly The Blind Babies Foundation) describes the characteristics of cortical visual impairment and offers a diagnostic fact sheet.
Perkins School for the Blind has a nice article about CVI written by Ellen Mazel, M.Ed. CTVI.
West Virginia Department of Education has training materials about cortical visual impairment and is a great place to learn about the CVI range.
Support Groups
Cortical Visual Impairments, a Yahoo! support group, is dedicated to helping others understand and share ideas about cortical vision impairments and how it relates to learning.
CVI Phase III Community on Facebook, focuses on Cortical Visual Impairment phase 3 teaching and development techniques.
The Lighthouse Guild (formerly The Jewish Guild for the Blind) offers a weekly conference call for parents of children with CVI. It is essentially a support group with guest speakers, including Dr. Roman-Lantzy, featured monthly.
Thinking Outside the Light-Box is a Facebook support group dedicated to children with CVI. It is a great place to ask questions and get ideas and suggestions from other parents.
Miscellaneous Non-CVI Resources
Here are a few links that have nothing to do with CVI, but have been helpful to us.
No Tube is a site run by University Children’s Hospital Graz in Austria. They offer both inpatient and netcoaching programs to help wean children off feeding tubes. This is how Little Bear learned to eat.
Tube Fed Kids Deserve to Eat is a forum offering support for parents of children with feeding tubes.
CouponChief outlines ways those with disabilities can stretch their dollars.